Empathy: The Human Connection to Patient Care
Powerful, thought provoking, and a must watch for everyone.

Digital Stories from ConnectGroups WA - Melissa Dumitru (former Founder & CEO of Pulmonary Hypertension Network Australia Shares her story of being diagnosed with Pulmonary Hypertension, and starting a Support Group, and Network for others with this rare disease.

Lung Foundation Australia Perth Education Seminar

Melissa Dumitru (former Founder & CEO of Pulmonary Hypertension Network Australia Shares practical tips for living with PAH. 

Understanding Is Rare - Lung Disease is Not! - One third of Australians believe people with lung disease have only themselves to blame, while one in ten will say they got what they deserved. Help break down the stigma and show people with lung disease that they matter too, visit lungfoundation.com.au/understand Judgement is never a cure. But understanding is a step towards one. 

Tegan - Breaking down the stigma - 

Understanding is rare, lung disease is not. One third of Australians believe people with lung disease have only themselves to blame, while one in ten will say they got what they deserved. Tegan never chose her struggle with Pulmonary Arterial Hypertension (PAH). When you say lung disease isn’t worthy of help, sadly, it makes people like Tegan believe it too. Anyone can get lung disease.​

Self-help videos for management of chronic conditions

Paul Epstein - How true healing comes from within.

Thought provoking and a completely different approach to supporting people living with disease that is well worth investing the time in watching these clips. Dr Paul Epstein in particular has an amazing approach that is 'patient centred' rather than the usual medical model and quite refreshing. 

Interaction Between Mind, Nervous System, and Immune System: 

Excerpt from "Immuno-Imagery DVD"

How to stay calm when you know you'll be stressed by Daniel Levitin

You're not at your best when you're stressed. In fact, your brain has evolved over millennia to release cortisol in stressful situations, inhibiting rational, logical thinking but potentially helping you survive, say, being attacked by a lion. Neuroscientist Daniel Levitin thinks there's a way to avoid making critical mistakes in stressful situations, when your thinking becomes clouded — the pre-mortem. "We all are going to fail now and then," he says. "The idea is to think ahead to what those failures might be."

Pulmonary hypertension can affect anyone, at any time. This short first-person account of being recently diagnosed shows how difficult everyday life with PH can be and how important it is to raise awareness of the disease. More information: http://www.phaeurope.org/

Cordelia Skuldt has had pulmonary hypertension since she was 4. She is here to challenge you today to take the Blue Lip Kiss challenge to raise awareness and money for this horrible disease. Here are the steps you can take:

This educational video aims to raise public awareness of the symptoms of pulmonary hypertension and the impacts of this rare, potentially fatal, disease. The video features pulmonary hypertension patients and caregivers from British Columbia, Canada who explain how PH impacts their lives on a daily basis. The video also explains the main symptoms of pulmonary hypertension and encourages viewers experiencing such symptoms to speak to their doctor about PH. The video was produced in partnership with Vancouver film cooperative Cineworks Independent Filmmakers Society and filmmaker Tyler Gamsby (Creek Water Media). To learn more, visit www.phacanada.ca

Experienced Yoga Sequence 

For people with chronic conditions

"Digital Stories" - Produced by ConnectGroups WA Self Help and Support Group Sector

Maree shares her story of being diagnosed with a rare lung condition and finding support in joining the Pulmonary Hypertension Network Australia.

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