Accepting this new reality, my chronic illness journey, is daunting. It’s not what I envisioned my life would look like. It’s not a complication I fully anticipated. I thought I’d work on my health and I would feel better. I didn’t expect I’d get worse.
I come from a family with rare diseases. I’ve watched chronic illness, sometimes on a daily basis. I was aware of what that looked like. Now, I guess I know what that feels like, too.