CURRENTLY UNDER CONSTRUCTION
WELCOME to the wonderful and crazy world of living with a chronic illness.
Whether you are newly diagnosed or you have been living with a chronic illness or disease for some time, either way I have found that information and education is the key to living a full and happier life.
On today's super highway of technology there is no shortage of access to all kinds of information. The key I think is knowing what the basics are, and getting some great tips for living, especially from people who have been doing it for a while, we call this "the lived experience".
Rare diseases, especially pulmonary hypertension are of special interest to me.
One of the best information websites I have found over the many years I have been in the self help and support group industry and community services, and as someone living with pulmonary hypertension is www.pulmonaryhypertensionrn.com This site has a nice balanced approach that is both scientifically backed, and includes the perspective of a person who actually lives with the disease.